Welcome to Grand Rounds, the weekly anthology of the best of the health blogs. (For those of you unfamiliar with Grand Rounds, which is hosted by a different health blog every week, you can read more about it here.)
What this case illustrates is the downside of highly specialized care. Any healthy child gets serial screening eye exams from birth until they register to vote………… but at least a primary care doctor shines a light into the pupil specifically in search of an abnormal flash of white. I suspect this part of her exam had not been done for years, or done only perfunctorily, by the specialists who were so involved in her kidney disease. Please understand, I'm not blaming them for missing this diagnosis. I just wish she'd had regular contact with a primary care pediatrician who might be rusty on anti-rejection protocols for transplant patients but who would have reached for the ophthalmoscope out of years of habit and care.
The first medical illustration demonstrating the surgical procedure used to correct it.
In my case, I called wanting a report from a minor surgery a few weeks after I had it done. I had already called the surgeon’s office and they said that while they did have a copy via their electronic medical record (EMR), the actual operative report was the hospital’s property and they couldn’t give me a copy; they just had viewing privileges, I was told…..
Obviously it didn’t, but the fun was just about to begin….