Updated 3/2017-- all links (except to my own posts) removed
as many are no longer active and it was easier than checking each one.
Recently I received an email alerting me of the RSD/CRPS Awareness quilt project. The RSD/CRPS community wants to increase public awareness of this disease. From the group’s Facebook page:
And from “OhMyNerves” BlogContribute a 12" x 12" patch to be added to the RSD/CRPS Awareness quilt make sure you keep what you want to show 1" away from the borders.This is for pain awareness help spread the word and make a square.Mail all quilt panels (squares) to:RSD/CRPS Awareness Quilt P.O. Box 500915 Malabar, Fl. 32950-500915Check out our links for information that can help you put your square together...everything from sewing tips to iron on transfers using your printer.If you have any questions please feel free to drop Troy Walker a message and I'll help you out if I can. Thank you very much for helping to spread awareness of Chronic Pain
The RSD/CRPS Awareness Quilt is an ongoing project and will be until there is a cure, If you have RSD or someone you love has it, please take the time to participate and send in your square for the quilt. Its growing fast and is already attracting some media attention. This project will do more than anything yet to finally get the problem of RSD/CRPS the attention it desperately needs
For more information on RSD/CRPS you may wish to start with these two posts of mine:
Complex Regional Pain Syndrome (Sept 29, 2008)
New Treatment for CRPS? (February 15, 2010)
Hi, I am part of the National RSD Awareness Quilt. I wanted to know if you would be interested in helping put together a panel and squares. Currently Troy is putting it together in Malabar, Fl. We could use any help we can get from other healthy individuals around the USA. Contact me at Hfreemyer@rmrsd.org if you or someone you know is interested in helping sew. Thanks so much for your consideration. Helen
ReplyDeleteI want to thank you very much for promoting the RSD Quilt on your site-it is very important to those of us involved!
ReplyDeleteThank you so much for sharing information about the CRPS/RSD Quilt project.
ReplyDeleteIt's so very important to everyone involved in the project. Not just those of us with RSD/CRPS but to our friends an families as well.
Thank you so much for promoting the RSD/CRPS Awareness Quilt on you web page...... As the wife of a person that has RSD I appreciate that you have done this....
ReplyDeleteI also look forward to seeing the square that you have made...
Thank you again Cyndi Wilson-Ellis