tag:blogger.com,1999:blog-7675087351939177300.post961804012429396440..comments2023-08-15T09:39:41.235-05:00Comments on Sutured for a Living: Guidelines for von Willebrand Diseaserlbateshttp://www.blogger.com/profile/15236331355857884458noreply@blogger.comBlogger14125tag:blogger.com,1999:blog-7675087351939177300.post-81033769938332568362010-03-19T00:12:55.031-05:002010-03-19T00:12:55.031-05:00My family is affected by von willebrands disease. ...My family is affected by von willebrands disease. In fact, my daughter is fighting complications from Ulcerative Colitis and von Willebrands disease right now at Seattle Children's hospital. Visit her website at www.helpinghannah.nethelpinghannahhttp://www.helpinghannah.netnoreply@blogger.comtag:blogger.com,1999:blog-7675087351939177300.post-12501292647200558152008-05-20T18:28:00.000-05:002008-05-20T18:28:00.000-05:00Very nice summary - this information is also extre...Very nice summary - this information is also extremely useful for the general practitioner/primary care/internal medicine docs who do pre-op clearances. There are lots of research studies which show that universal pre-op coag blood tests in asymptomatic patients aren't cost-effective at picking up who's at risk for bleeding. Unfortunately, these same studies usually don't say HOW to screen for symptoms(!). These questions are very targeted and useful.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-7675087351939177300.post-70822581121692536802008-05-20T15:22:00.000-05:002008-05-20T15:22:00.000-05:00The guidelines suggest that at least some if not a...The guidelines suggest that at least some if not all of the questions should be asked of surgery patients. Most of us were taught to ask about easy bruising, bleed easily, how long it takes to quit. If those are positive, then it doesn't hurt to ask the others or just go to the screening labs.rlbateshttps://www.blogger.com/profile/15236331355857884458noreply@blogger.comtag:blogger.com,1999:blog-7675087351939177300.post-91550524809025592552008-05-20T15:15:00.000-05:002008-05-20T15:15:00.000-05:00The questions you laid out you said were for scree...The questions you laid out you said were for screening. Do the guidelines say that we should actually start <I>screening</I> patients (presurgical patients, for example) for VWD? Or are these useful questions to ask only for <I>symptomatic</I> patients?Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-7675087351939177300.post-51715890648488223442008-05-20T12:12:00.000-05:002008-05-20T12:12:00.000-05:00Not that I am aware of, but be sure to ask you hem...Not that I am aware of, but be sure to ask you hematologist. I would think they have checked all those things for you.rlbateshttps://www.blogger.com/profile/15236331355857884458noreply@blogger.comtag:blogger.com,1999:blog-7675087351939177300.post-42116418389373743092008-05-20T12:07:00.000-05:002008-05-20T12:07:00.000-05:00Is there a connection between this disease and HHT...Is there a connection between this disease and HHT (Hereditary Hemorrhagic Telangiectasia)? We have HHT in our family but I have not ever heard of this you are speaking of. Our bleeding is in relation to weakening of the blood vessels. But I have seen family members literally bled to death from HHT.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-7675087351939177300.post-54506817362342977242008-05-13T17:40:00.000-05:002008-05-13T17:40:00.000-05:00MWWAK, I'm glad your brother is okay! Not a great...MWWAK, I'm glad your brother is okay! Not a great way to get diagnosised.rlbateshttps://www.blogger.com/profile/15236331355857884458noreply@blogger.comtag:blogger.com,1999:blog-7675087351939177300.post-39211336571188863182008-05-13T17:34:00.000-05:002008-05-13T17:34:00.000-05:00Thanks for the info! :) It's always good to have ...Thanks for the info! :) It's always good to have VWD info bookmarked. :)<BR/><BR/>Incidentally, my little brother had VWD diagnosed when he needed a transfusion and intubation for a bleed from a tonsilectomy. I'm sure the ENT surgeon was hating life during that time, and thank goodness my brother's ok. :)Midwife with a Knifehttps://www.blogger.com/profile/04309579302399381913noreply@blogger.comtag:blogger.com,1999:blog-7675087351939177300.post-12790890326833758172008-05-12T19:49:00.000-05:002008-05-12T19:49:00.000-05:00Dr Smak, you are very welcome.Dr Smak, you are very welcome.rlbateshttps://www.blogger.com/profile/15236331355857884458noreply@blogger.comtag:blogger.com,1999:blog-7675087351939177300.post-47975970640355919662008-05-12T19:47:00.000-05:002008-05-12T19:47:00.000-05:00Dr Clairebear, it never hurts me to review the que...Dr Clairebear, it never hurts me to review the questions. Some patients seem to make it tough to get straight answers.rlbateshttps://www.blogger.com/profile/15236331355857884458noreply@blogger.comtag:blogger.com,1999:blog-7675087351939177300.post-43669622922534679902008-05-12T19:33:00.000-05:002008-05-12T19:33:00.000-05:00Great link! Thanks for the info...Great link! Thanks for the info...Dr. Smakhttps://www.blogger.com/profile/11578423336319528698noreply@blogger.comtag:blogger.com,1999:blog-7675087351939177300.post-75689938376408211992008-05-12T19:13:00.000-05:002008-05-12T19:13:00.000-05:00hey, thanks for sharing! i find that among patient...hey, thanks for sharing! i find that among patients i've had to risk evaluate for surgery pre-operatively, bleeding problems are the hardest to pick up by history - maybe because i'm still not quite used to asking the right questions and looking for the right clinical pearls.dr_clairebearhttps://www.blogger.com/profile/14019592712453965433noreply@blogger.comtag:blogger.com,1999:blog-7675087351939177300.post-87126202872941431972008-05-12T07:46:00.000-05:002008-05-12T07:46:00.000-05:00Thanks for that input.Thanks for that input.rlbateshttps://www.blogger.com/profile/15236331355857884458noreply@blogger.comtag:blogger.com,1999:blog-7675087351939177300.post-39330057739758953022008-05-12T07:30:00.000-05:002008-05-12T07:30:00.000-05:00Very nice, thanks. I've actually picked up a few c...Very nice, thanks. I've actually picked up a few cases of VWF disease in women wtih menorrhagia. The classic presentation is menorrhagia presenting from menarche.Margaret Polaneczky, MD (aka TBTAM)https://www.blogger.com/profile/16555722791007332247noreply@blogger.com