tag:blogger.com,1999:blog-7675087351939177300.post2200038923791925812..comments2023-08-15T09:39:41.235-05:00Comments on Sutured for a Living: Macrodactylyrlbateshttp://www.blogger.com/profile/15236331355857884458noreply@blogger.comBlogger14125tag:blogger.com,1999:blog-7675087351939177300.post-89566502979581302582013-04-17T06:17:46.551-05:002013-04-17T06:17:46.551-05:00Sarah, it is impossible for me to predict whether ...Sarah, it is impossible for me to predict whether your daughters toe growth remain static or suddenly increase. I would encourage you to establish a relationship with a pediatric plastic or orthopedic surgeon who has experience or interest in macrodactyly. rlbateshttps://www.blogger.com/profile/15236331355857884458noreply@blogger.comtag:blogger.com,1999:blog-7675087351939177300.post-2985393274591472112013-04-16T22:32:20.745-05:002013-04-16T22:32:20.745-05:00My 5 month old daughter was diagnosed with Macroda...My 5 month old daughter was diagnosed with Macrodactyly. I am trying to determine if hers is static or progressive. Her enlarged toes have been staying about the same percentage larger than the other toes. Does that mean that the growth will remain static or could they all of a sudden start growing faster than the other digits?Sarahhttps://www.blogger.com/profile/14426858847539916154noreply@blogger.comtag:blogger.com,1999:blog-7675087351939177300.post-34911163453442861372012-02-16T09:16:46.164-06:002012-02-16T09:16:46.164-06:00Not very familiar with physicians in Ausralia but ...Not very familiar with physicians in Ausralia but am aware of a good plastic surgeon, Dr Jill Tomlison, at Hunter New England Area Health Servicesrlbateshttps://www.blogger.com/profile/15236331355857884458noreply@blogger.comtag:blogger.com,1999:blog-7675087351939177300.post-5421269143591664502012-02-16T08:20:36.495-06:002012-02-16T08:20:36.495-06:00I have a 3yo old son with macrodactyly of his left...I have a 3yo old son with macrodactyly of his left foot (affecting his 2nd and 3rd toes). We have been advised to go with amputation although are reluctant to do so without attempting debulking first. The growth to his foot since birth has increased, but this appears consistent with the fact that he too has grown!<br />We are in Australia and willing to travel to find someone who may be able to help. We have been seeing an orthopaedic surgeon although I was thinking that a plastic surgeon would be more suitable.<br />Any suggestions?Leebeenoreply@blogger.comtag:blogger.com,1999:blog-7675087351939177300.post-10251654227116686152012-01-10T17:43:35.501-06:002012-01-10T17:43:35.501-06:00Michelle, I hope all works out for your daughter. ...Michelle, I hope all works out for your daughter. It takes an incredibly brave young lady to achieve so much while facing this sort of challenge. I admire your daughter. I have this condition in my left hand as well, and also had a benign tumor in my neck that had to be operated on. I went throughout high school hiding my problem because I was so ashamed. But now that I am a few years older, I realize...it could be worse. It could always be worse. For your daughter and I, we may not feel lucky. But to the person who has deformities all over their body that causes malfunction in everything or simply to the person who can't wear their shoes-your daughter and I are very lucky. Sometimes, it's easy to overlook the important things. I was operated on in Texas Children's Hospital and Shriners. Both are excellent hospitals, but I still have much work to be done. My doctor told me that around age 18 when my finger slowed growth, that I could get plastic surgery. But I haven't been back yet to get it worked on because I am in college now at age 20 and I'm a busy person. I have to take off college to have my operation. Anyways, good luck with everything. From a stranger to a stranger, God bless and I hope all good things happen for your courageous daughter.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-7675087351939177300.post-70208621509088426692012-01-08T14:38:18.116-06:002012-01-08T14:38:18.116-06:00Thank you so very much!I do actually still have he...Thank you so very much!I do actually still have her x-rays and mri on a cd.Blessings michellemichellehttps://www.blogger.com/profile/10827454403754316112noreply@blogger.comtag:blogger.com,1999:blog-7675087351939177300.post-59169398501161989792012-01-08T10:56:02.083-06:002012-01-08T10:56:02.083-06:00Michele, I don't know how to answer that quest...Michele, I don't know how to answer that question. It would be best answered by someone who knows exactly what was done in the earlier surgery (so get those records for the new doc) and who can examine her hand now including current x-rays. Best to you both.rlbateshttps://www.blogger.com/profile/15236331355857884458noreply@blogger.comtag:blogger.com,1999:blog-7675087351939177300.post-71912950001150499062012-01-08T10:41:25.428-06:002012-01-08T10:41:25.428-06:00Thank you so much for your blog!I have a 14 year o...Thank you so much for your blog!I have a 14 year old daughter that has this condition in her left hand.It affects her index and palm.She also has a huge benign tumor in her wrist that is combinded with the nerve.She had surgery at the cleveland clinic three years ago.69 stitches from her wrist to the tip of her finger to debulk.The surgeon couldnt do anything about her wrist.She is a absolute wonderful,beautiful child.She has been a cheerleader for five years.She competes in competitions and is and avid tumbler on her squad.She has been experiencing some hand pain lately and we are starting to question another surgery.My question to you is do you think the digit will continue to grow throughout her life or does it stop at a certain age?Thank you so much and blessings michellefincham@blogspot.commichellehttps://www.blogger.com/profile/10827454403754316112noreply@blogger.comtag:blogger.com,1999:blog-7675087351939177300.post-71452080310707224222011-01-15T01:57:33.369-06:002011-01-15T01:57:33.369-06:00Admittedly, many times I'm skeptical of the wo...Admittedly, many times I'm skeptical of the work plastic surgeons do. Then, I am reminded of problems such as these and am happy that medicine has advanced so that we have doctors who can fix problems such as these.Aritulhttps://www.blogger.com/profile/01687717613812613840noreply@blogger.comtag:blogger.com,1999:blog-7675087351939177300.post-40208534560647682382009-10-12T07:31:01.261-05:002009-10-12T07:31:01.261-05:00That made excellent reading. Thank you.That made excellent reading. Thank you.AJhttp://www.ajmedpix.blogspot.comnoreply@blogger.comtag:blogger.com,1999:blog-7675087351939177300.post-69859635445307392912009-08-28T15:36:38.903-05:002009-08-28T15:36:38.903-05:00Carla, I think I would look for a plastic surgeon ...Carla, I think I would look for a plastic surgeon who does hand surgery or try your local/regional Children's Hosp (ortho or plastic department).rlbateshttps://www.blogger.com/profile/15236331355857884458noreply@blogger.comtag:blogger.com,1999:blog-7675087351939177300.post-89107939959410760732009-08-28T15:31:48.170-05:002009-08-28T15:31:48.170-05:00I have been looking for help for my son he was bor...I have been looking for help for my son he was born with this and I have had the worst time in life trying to find someone who knew how to help him. He is now 24 and has an enormous left foot and would like surgery to heal this.<br />Can you help me?Carla Danielnoreply@blogger.comtag:blogger.com,1999:blog-7675087351939177300.post-48618230729706973132009-08-09T23:27:28.427-05:002009-08-09T23:27:28.427-05:00Thank God for docs who can help people with these ...Thank God for docs who can help people with these things. <br /><br />That must be so difficult for them. I guess they adapt for use, but it is sad. <br /><br />I've never heard of this before.SeaSprayhttps://www.blogger.com/profile/07906503090688697222noreply@blogger.comtag:blogger.com,1999:blog-7675087351939177300.post-31601362629640564712009-07-30T21:53:40.192-05:002009-07-30T21:53:40.192-05:00A minor point - Maffucci is with two c's. This...A minor point - Maffucci is with two c's. This is a nicely written and informative article. Thanks!3healthymonkeyshttp://3healthymonkeys.wordpress.comnoreply@blogger.com